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Title

Quality of life and level of burden for caregivers of Indian children with post-operative congenital anorectal malformations

 

Authors

Nitu Godara1,*, Geetarani Nayak1 & Bikasha Bihary Tripathy2

 

Affiliation

1College of Nursing, All India Institute of Medical Sciences, Bhubaneswar, India; 2Department of Pediatric Surgery, All India Institute of Medical Sciences, Bhubaneswar, India;*Corresponding author

 

Email

Nitu Godara - E-mail: nitugodara2017@gmail.com; Phone: +91 9462259242

Geetarani Nayak - E-mail: con_geetarani@aiimsbhubaneswar.edu.in; Phone: +91 9437289279

Bikasha Bihary Tripathy - E-mail: pedsurg_bikasha@aiimsbhubaneswar.edu.in; Phone: +91 99381 04876

 

Article Type

Research Article

 

Date

Received May 1, 2024; Revised May 31, 2024; Accepted May 31, 2024, Published May 31, 2024

 

Abstract

Parenting starts much before the baby is born. It always comes with mixed feelings during parenting. Therefore, it is of interest to report the quality of life and caregiver burden for Indian children with post-operative congenital anorectal malformations. We recruited total 56 caregivers for the present study. Data shows that the highest caregiver burden in economical and the lowest in psychological. Quality of life (QOL) was highest in physical domain and there was moderate negative correlation among caregiver burden, psychological health, and social relationship.

 

Keywords

Anorectal malformation, care givers, disability parenting

 

Citation

Godara et al. Bioinformation 20(5): 566-570 (2024)

 

Edited by

P Kangueane & P. Babaji

 

ISSN

0973-2063

 

Publisher

Biomedical Informatics

 

License

This is an Open Access article which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. This is distributed under the terms of the Creative Commons Attribution License.