Title

Parental perspectives on access to paediatric oncology clinical trials and treatment options: A cross-sectional survey

Authors

Yuvaraj Perumal¹, S Yogesh², S Roshni³, R Saranya⁴, Nithyashree Sathiyamurthy⁵, Gajalakshmi^6,*, Yagvalkya Sharma⁷ & Mohana Kanthamneni⁸

Affiliation

¹Department of Neuro ICU, People Tree Hospitals, Tumkur Road, Goraguntepalya, Bengaluru, Karnataka, India; ²Institute of Internal Medicine, Madras Medical College & Rajiv Gandhi Government General Hospital, MHPE Scholar, Sri Balaji Vidyapeeth University, Pondicherry; ³Department of Pediatrics, Madras Medical College, Chennai, India; ⁴Department of Community Medicine, Madha Medical College and Research Institute, Chennai, India; ⁵Institute of Internal Medicine, Madras Medical College, Chennai, Tamil Nadu, India; ⁶Department of Community, Veer Chandra Singh Garhwali Government Institute of Medical Science and Research, Srinagar, Pauri Garhwal, Uttarakhand, India; ⁷Department of Research, Kalp Research Work, Mathura, Uttar Pradesh, India; ⁸Department of Pediatrics, Fernandez Hospital Hyderabad, Telangana, India; *Corresponding author

Email

Yuvaraj Perumal - E - mail: yuvaraj396@gmail.com; phone: +91 9342218165

Yogesh S - E - mail: yeswhy20@gmail.com; phone: +91 9600128033
Roshni S - E - mail: roshnisuresh.324@gmail.com; phone: +91 6385757771

Saranya R - E - mail: bsaranyar@gmail.com; phone: +91 9600048825

Nithyashree Sathiyamurthy - E - mail: nithyashree1125@gmail.com; phone: +91 8300778566

Gajalakshmi - E - mail: sgajalakshmi1911@gmail.com; phone: +91 8197600376

Yagvalkya Sharma - E - mail: sonusharma23@gmail.com; phone: +91 9953329363
Mohana Kanthamneni - E - mail: mohana.kantamneni9@gmail.com; phone: +91 9491555888/+91 6281206877

Article Type

Research Article

Date

Received December 1, 2024; Revised December 31, 2024; Accepted December 31, 2024, Published December 31, 2024

Abstract

Parents of children with cancer often face complex decisions about clinical trial participation and treatment options. This cross-sectional survey of 100 parents of pediatric oncology patients explored their perspectives on accessing clinical trials, focusing on influencing factors and perceived barriers. While most parents expressed interest in clinical trial participation, common obstacles included inadequate information, geographic constraints, and financial challenges. Many parents emphasized the need for improved communication with healthcare providers to better understand trial risks and benefits. These findings suggest that addressing informational and logistical barriers can enhance access to clinical trials and support informed decision-making among parents of pediatric oncology patients.

Keywords

Paediatric oncology, clinical trials, parental perspectives, access to treatment, decision-making, barriers, cross-sectional survey

Citation

Perumal et al. Bioinformation 20(12): 1959-1963 (2024)

Edited by

A Prashanth

ISSN

0973-2063

Publisher

Biomedical Informatics

License

This is an Open Access article which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. This is distributed under the terms of the Creative Commons Attribution License.